The Family Gene
A Mission to Turn My Deadly Inheritance into a Hopeful Future
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Narrated by:
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Khristine Hvam
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By:
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Joselin Linder
About this listen
When Joselin Linder was in her 20s, her legs started to swell. She thought little of it until her health problems started to compound in ways that baffled her doctors. Diagnosed with extreme liver blockage and dangerous levels of lymph fluid, Joselin turned to the most similar case she could think of - her father's.
Joselin compared the medical chart of her father - who had died of an undiagnosed disease 10 years prior - -with that of an uncle who had died under similarly strange circumstances. Delving further into the past, she discovered that her great-grandmother had symptoms like hers, and she recognized that she was dealing with something more than a fluke. Whatever had killed her father, uncle, and great-grandmother was likely genetic, and the clock was ticking for the family members of her own generation.
Setting out to build a more complete picture of the disease that haunted her family, she approached Dr. Christine "Kricket" Seidman, the head of a group of world-class genetic researchers at Harvard Medical School and a colleague of her late father's, for help. Dr. Seidman has been attempting the map the faulty gene for 17 years and has confirmed not only that Joselin's symptoms are genetic but that Joselin's family is this disease's founder population - a group of people experiencing the baffling symptoms of a brand-new mutation. Here, Joselin tells the story of their gene: the lives it claimed and the future of genetics it foretells.
Digging into family records and medical history, interviews with family and friends, and her own experiences with Harvard doctors, Joselin pieces together the story of a deadly gene to write a gripping and unforgettable exploration of family, history, love, and mortality. A compelling story of survival and perseverance, The Family Gene is an important story of a young woman reckoning with her father's death, her own mortality, and her ethical obligations to herself, family, and society.
©2017 Joselin Linder (P)2017 HarperCollins PublishersListeners also enjoyed...
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Story
There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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Sadly, not very engaging.
- By Debra S. Long on 06-16-18
By: Sheila Himmel, and others
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Modern Loss
- Candid Conversation About Grief. Beginners Welcome.
- By: Rebecca Soffer, Gabrielle Birkner
- Narrated by: Meredith Mitchell, Josh Bloomberg
- Length: 7 hrs and 40 mins
- Unabridged
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At a time when we mourn public figures and national tragedies with hashtags, where intimate posts about loss go viral and we receive automated birthday reminders for dead friends, it's clear we are navigating new terrain without a road map. Let's face it: Most of us have always had a difficult time talking about death and sharing our grief. We're awkward and uncertain; we avoid, ignore, or even deny feelings of sadness; we offer platitudes; we send sympathy bouquets whittled out of fruit.
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Not What I Was Expecting
- By Bessie Mae on 03-01-23
By: Rebecca Soffer, and others
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The Spirit Catches You and You Fall Down
- A Hmong Child, Her American Doctors, and the Collision of Two Cultures
- By: Anne Fadiman
- Narrated by: Pamela Xiong
- Length: 13 hrs and 37 mins
- Unabridged
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When three-month-old Lia Lee arrived at the county hospital emergency room in Merced, California, a chain of events was set in motion from which neither she nor her parents nor her doctors would ever recover. Lia's parents, Foua and Nao Kao, were part of a large Hmong community in Merced, refugees from the CIA-run "Quiet War" in Laos.
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Good audiobook but narrator struggles with basic pronunciation
- By Kate on 06-04-15
By: Anne Fadiman
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Marrow
- A Love Story
- By: Elizabeth Lesser
- Narrated by: Elizabeth Lesser, Sally Field
- Length: 9 hrs and 42 mins
- Unabridged
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A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life Elizabeth Lesser has sought understanding about what it means to be true to yourself and, at the same time, truly connected to the ones you love. But when her sister, Maggie, needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love.
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“ Love came first “
- By marie on 03-26-18
By: Elizabeth Lesser
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Appointments with Heaven
- The True Story of a Country Doctor's Healing Encounters with the Hereafter
- By: Dr. Reggie Anderson, Jennifer Schuchmann
- Narrated by: Eric G. Dove
- Length: 9 hrs and 14 mins
- Unabridged
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When a patient first asked Dr. Reggie Anderson to sit at her bedside as she passed from this life, something miraculous happened. As he held her hand, the veil between this world and the next parted…and he received an astonishing glimpse of what awaits us in heaven. Little did he know this was just a foretaste of what was to come - a lifetime of God-given "appointments with heaven." Join Reggie as he shares remarkable stories from his life and practice, including the personal tragedy that nearly drove him away from faith forever.
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More about Christianity than the Hereafter
- By Karen on 11-25-14
By: Dr. Reggie Anderson, and others
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Forever Ours
- Real Stories of Immortality and Living from a Forensic Pathologist
- By: Janis Amatuzio
- Narrated by: Janis Amatuzio
- Length: 3 hrs and 49 mins
- Unabridged
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Forensic pathologist Janis Amatuzio first began recording the stories told to her by patients, police officers, and other doctors because she felt that no one spoke for the dead. She believed the real experience of death, namely the spiritual and otherworldly experiences of those near death and their loved ones, was ignored by the medical professionals, who thought of death as simply the cessation of breath. She knew there was more.
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Forever Ours
- By Londa on 01-04-06
By: Janis Amatuzio
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Ghostbelly
- By: Elizabeth Heineman
- Narrated by: Coleen Marlo
- Length: 7 hrs and 52 mins
- Unabridged
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Ghostbelly is Elizabeth Heineman’s personal account of a home birth that goes tragically wrong—ending in a stillbirth—and the harrowing process of grief and questioning that follows. It’s also Heineman’s unexpected tale of the loss of a newborn: before burial, she brings the baby home for overnight stays.
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Healing
- By ngsquared on 04-17-23
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Like a Mother
- A Feminist Journey Through the Science and Culture of Pregnancy
- By: Angela Garbes
- Narrated by: Roxana Ortega, Angela Garbes
- Length: 7 hrs
- Unabridged
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What to listen to after What to Expect.... A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives. Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of postpartum depression?
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Microchimerism - interesting at first, then profoundly healing
- By Emily Virgil on 09-10-18
By: Angela Garbes
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The Desperate Hours
- One Hospital's Fight to Save a City on the Pandemic's Front Lines
- By: Marie Brenner
- Narrated by: Kirsten Potter
- Length: 15 hrs and 41 mins
- Unabridged
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In the spring of 2020, COVID-19 arrived in New York City. Before long, America’s largest metropolis was at war against a virus that mercilessly swept through its five boroughs. In The Desperate Hours, award-winning journalist Marie Brenner, having been granted unprecedented 18-month access to the entire New York-Presbyterian hospital system, tells the story of the doctors, nurses, residents, researchers, and suppliers who tried to save lives across Manhattan, Queens, and Brooklyn and the northern periphery of the city.
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Way too much politics
- By Josh on 07-18-22
By: Marie Brenner
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Because I Come from a Crazy Family
- The Making of a Psychiatrist
- By: Edward M. Hallowell
- Narrated by: Paul Boehmer
- Length: 13 hrs and 41 mins
- Unabridged
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When Edward M. Hallowell was 11, a voice out of nowhere told him he should become a psychiatrist. A mental health professional of the time would have called this psychosis. But young Edward (Ned) took it in stride, despite not quite knowing what "psychiatrist" meant. With a psychotic father, an alcoholic mother, an abusive stepfather, and two so-called learning disabilities of his own, Ned was accustomed to unpredictable behaviour from those around him and to a mind he felt he couldn't always control.
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Love and connection permeates through this book!
- By Steve Steinmetz on 06-29-18
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The Second Opinion
- By: Michael Palmer
- Narrated by: Franette Liebow
- Length: 9 hrs and 43 mins
- Unabridged
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Here, Michael Palmer has created a cat-and-mouse game where one woman must confront a conspiracy of doctors to uncover an evil practice that touches every single person who ever has a medical test. With unforgettable characters and twists and betrayals that come from the most unlikely places, The Second Opinion will keep you guessing...and looking over your shoulder.
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great story line; unnecessary love affair
- By Anonymous User on 05-26-09
By: Michael Palmer
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Chicken Soup for the Soul: Think Positive
- 101 Inspirational Stories about Counting Your Blessings and Having a Positive Attitude
- By: Jack Canfield, Mark Victor Hansen, Amy Newmark, and others
- Narrated by: Tanya Eby, Jim Bond
- Length: 10 hrs and 39 mins
- Unabridged
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101 True Stories about how Positive Thinking can change your life! Everyone needs a little attitude adjustment once in a while, and these amazing true life stories reveal how real people used positive thinking to improve their lives and overcome challenges. You’ll read stories about how you can make every day a special day, incorporate gratitude and joy into your daily life, count your blessings and change your outlook, use a few well-chosen words to reorient your life, manage cancer and other health challenges through a positive attitude, simplify and have a more meaningful life and more!
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Good overall.
- By Sergey Makeev on 02-21-24
By: Jack Canfield, and others
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Rise and Shine
- The Path to Life
- By: Simon Lewis
- Narrated by: Kelsey Grammer
- Length: 8 hrs and 59 mins
- Unabridged
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Crushed between a truck and a tree, Simon and his wife were both pronounced dead at the scene of a horrific car accident. Enduring a broken skull, jaw, arms, clavicle and pelvis, followed by a coma, Simon lives to tell his remarkable journey from tragedy to triumph.
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Amazing opportunities for healing!
- By Leah on 04-29-17
By: Simon Lewis
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Confessions of a GP
- By: Benjamin Daniels
- Narrated by: Eamonn Riley
- Length: 6 hrs and 1 min
- Unabridged
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Benjamin Daniels is angry. He is frustrated, confused, baffled and, quite frequently, very funny. He is also a GP. These are his confessions.A woman troubled by pornographic dreams about Tom Jones. An 80-year-old man who can't remember why he's come to see the doctor.
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Very enjoyable
- By PCF on 05-27-17
By: Benjamin Daniels